Showing posts with label medical care. Show all posts
Showing posts with label medical care. Show all posts

Tuesday, June 07, 2011

ALL A JUMBLE

I saw a photograph of a person who was easily recognisable in an article about success they have had in their chosen field.  I was suddenly overwhelmed by a feeling that I found very difficult to put into words or at least into one word.

When I look at my life I often feel that I have contributed nothing. This bothers me.

Don’t misunderstand me.  On a very personal level I have been a huge success in overcoming against all odds.  When you know that I used to self harm, that I used to starve myself and binge and vomit and take laxatives, that I spent long periods of time indoors too afraid to go out, that even when I was able to go out was very difficult to do so because I would have to check everything over and over and over until in the end I didn’t bother going out, or if I did I would only have to return to make sure that I had indeed turned off the gas and locked the doors and unplugged this that or the other. I did not used to stick up for myself, I did not value myself and I have far too many people in my life that just increased my sense of not being good enough.  Okay so this sentence grew too long but you get the idea what I’m trying to say.  I do not do any of this stuff any more.  I even deal very well with my physical disabilities now.

This is all that I have had time for in my life; recovering from the first 16 years of it.  This seems to me to be such a waste and I wonder what I could have become had I not had all these obstacles to overcome.  I know of other people who have had far worse starts than I did who have still become successful and productive adults.

This does not mean that I do not feel very fortunate to have the life that I have.  It amazes me on a daily basis.  I would never have believed that the good life I have today would have been possible.  In fact I did not believe it was possible.  The way my life has turned out has been a total surprise to me.  I never ever forget where I came from and on those days that I am tempted to feel sorry for myself I remember how bad things used to be.

Yet I still feel as though I did not blossom.  I am not sure if this lack I feel is purely an ego driven thing in that I would want other people to see me as a success. For example, John is a world-renowned expert in his field and recognised as such.  Is this what makes me feel like something is missing?  I am not recognised as an expert in anything because I am not!

Or is it me who holds the attitude that I cannot be a success unless I have a job or career or talent that shows that I am?  I guess I do think that the success I have had personally in gaining sanity is not enough.  I think that many other people have done the same and also become a success in a given field.  I have been told that whilst other people have indeed done this most of them did not have all of the obstacles that I had. I remember being shown a list of seven things that a child required in order to become a stable adult.  I scored one.  Is it really that simple?

There is also this point; perhaps I feel resentful that my energy was all used up in the fight for sanity and I had no time or strength for anything else. Imagine if I had and I was pulling in a salary similar to John’s.  If that were so I might feel that I gave as much as I took.

Although I know that I am very fortunate it is not easy to just accept being on the receiving end all of the time.  This sounds jolly ungrateful but those who read me often enough know that ingratitude is not one of my problems.

It is also about freedom.  Knowing that the quality of my life is dependent upon another is both humbling and frightening.  By humbling I do not mean humiliating. I mean that my situation prevents me from looking down upon those who are not as fortunate as me and always remembering that fact. Frightening because my lifestyle very much depends upon somebody else.

This post seems like it is a bit of a mess and whilst it has brought vague feelings together into a more solidified group, I am not aware of any conclusion.

Perhaps this is just one of those things that I have to accept; that my life will always be about receiving especially as my physical needs grow.  I have to say that if my needs grow to such an extent that I need to be in a care home then that will be when I check out.  I have been in such totally dependent and vulnerable situations before and I can assure you that those situations were Hell-like and I will never allow that to happen again.  I was persuaded at the end of 1994 to go into a private clinic.  I was told that my experiences in the late 70s in public funded care would not be repeated in a private clinic.  That was a lie.  My experiences were precisely the same; the general ignorance about what I needed and a blind eye turned toward abusive staff and out of control clients.  I have since found out that they even tried to stop John’s daily visits.  No, I will never let this happen again.

Well I wasn’t at all sure about what I would write about when I started and as I have already said I don’t feel like I have come to any conclusions.  However, I feel a reinforced gratitude for the life that I have.  I think remembering what it was like to be “in care” has brought me back to today and how grateful I am that my life today is very very different.  Perhaps this other lack of success that I feel is just an illusion and maybe, outward success is not what it is about. 

Perhaps everything I have achieved on a personal level IS what it is about?  Maybe. I still think I could have had more.  Like a career. Or a proper outlet for my talents, ones that would have shown one way or the other if I was talented or just proficient. I’ll never know.

One of my big disappointments happen as a result of moving out here.  When I lived in London I was a sought after medium with both private clients and public speaking engagements coming out of my ears.  However, in the area in which I now live I am not liked.  As a result of this my work ground to a halt.  I know that it has nothing to do with the quality of my evidence as that is sound and much sounder than most I see.  I have had more than one booking secretary tell me to my face that I was not considered acceptable because the example I give of somebody who’s life was pulled out of the gutter by the principles I was imparting, was not what people wanted to hear.  One even suggested it was offensive.  I feel as though all of the work I did on developing and of overcoming my fear of other people and public speaking was all a waste.  Yes, because of my physical problems, my work would have been restricted but it would not have been demolished as it now has been.

Now that I have got to this point in my writing I realise that this is the one area that I am deeply upset about.  It makes me wonder what the point of it all was.  Why would I go through so much in order to better use my gift and impart my knowledge and experience to only have the rug pulled out from under my feet?  I have not used my gift for a long time.  I have not even been to listen to anybody else.  All seems to me like it amounts to nothing.  What is the point of being very good evidentially if I have no outlet for it? The only thing I have done simply is describe the pick of litter remotely for a friend! That was not asked for it just came unbidden but it is hardly… Well I’m not sure but it doesn’t seem like a big deal.

Right, I now think I am rambling so I am going to sign off today.  (The whole time I have been writing this my program keeps telling me that it is receiving poor voice yet it has written everything I have spoken almost 100% perfectly! Normally, I am having to stop and correct and it does not go on about receiving poor voice!)

Saturday, October 03, 2009

DIE FOR FREE

I settled on a design for my next pair. It took a few frogs before I settled on this and kept it in my head. It turned out to be a simple pattern, different from what I started with, but more in keeping with the image I had of what I wanted. The needle is a Knit Pro (Picks) 2.25mm. The yarn is by Lana Grossa and it is part of the Meilenweit (Uni) range.
These two pictures are my drugs, two months worth. I get all of these for free. they alleviate suffering and keep me alive or ratehr lessen the risk of sudden death. If I have understood correctly, the majority of Americans would rather see me suffer and die than provide medical care for all.
I was up at 5.30am today. I am off to a dog show tomorrow morning and need to be up at 2 am so I always get up early the day before to help me be tired by the 7am bed time.

There is a possibility that we won't be going to the show. There are weather warnings out for today of high winds. It is already very windy. Tomorrow is supposed to be settled and cold. We will wait and see.

I have another show on Thursday deep in the wilds of Wales and then the 40th Anniversary show of The Lhasa Apso Club (the first UK club). Then I have a couple of weeks off till the last show of this month.I have one more in November. There is another November show and two more in December but I am probably going to stay at home.

The dogs amuse me. They each have their own cage. They are kept in them when I ma out or in bed or any time I need them to be safe and out of the way. Mostly, they do as they please. When I came up here to the pc, I was closing gates so that none could get at my knitting. I noticed all was quiet and took a peak and there each dog was, in their own cage, sleeping with their heads hanging out. to them, their cage is their den. At dinner time, they all go rushing into their beds. Any time I say 'bed' they do the same. It is quite a thing to see. Seven dogs each going to the right bed. It's like watching a Red Arrow display team.

I am reading the new Dan Brown novel, The Lost Symbol. We have it in hardback because John had to read it for work. I am enjoying the book. I think he knows hoe to write a thriller.

I used to read a couple of books a week. Now, no matter how much I am enjoying the book, I don't read more than a few pages each night before I fall asleep. I go to be bed early to give me at least an hour's reading time but it doesn't work. I fall asleep!

Speaking, (okay writing) of sleep, I am sleeping better recently. Waking up less, getting up less often and not had any spasms since last weekend. That weekend was rough. Very little sleep and no matter what I did, I awoke all over again with my rib cage in spasm. My usual trick of propping myself up on the horseshoe shaped pillow didn't help.

It has been a much better week with regard to fatigue. I have changed my swimming routine. I know get to the pool for the last half hour of the Early Bird session which finishes at 9am. This gives me enough time to do half the amount of laps I am used to. I have done it 4 times this week. I feel satisfied with this. I have at last stopped fighting and accepted that my days of 1mile a day, 7 days a week have gone. I don't know why other than my illness is progressive and I guess this is what that means. I think if it was just a blip, I'd have been able to go back to that ages ago. instead I have struggled with this issue for a year. no matter how much I forced myself, went to bed earlier, made other adjustments, I just could not get back to that amount of swimming. As a result I put on 7lbs in weight. Not from lack of swimming but because I made myself weak and miserable and exhausted and thus how I ate took a turn for the worse. I am back on track now.